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MND members attend MPs Listening Event for Communities

                              

                            Gordon Marsden MP              Peter, Gordon Marsden MP & Gwynneth

 
Richard Emmess and Gwynneth Mugonyi

On 15 July 2011, Peter and Gwynneth were invited to attend this event, which was held at St. Paul’s Church, off  Whitegate Drive, Blackpool. Gwynneth was able to discuss the following problem with Richard Emmess
 Director of Corporate Affairs and Partnerships

The Royal Preston Hospital (RPH) has a Centre of Excellence, which provides services to people living with MND in Lancashire and South Cumbria. 

The Neurology and Respiratory Clinicians at the RPH have set up a ‘Hub & Spoke’ model which is used to assess and support patients, with respiratory weaknesses. This infrastructure enables them to provide a ‘Multi-disciplinary Assessment and Support’ through ‘Out-reach Clinics’ based at six Hospice centres in the region.

However, people living with MND have to make a round journey of about 90 miles to Manchester and Liverpool to be provided with “Home Ventilators”. These people are not given proper out-reach support and are left to manage on their own. This service can be provided locally, effectively and economically by Clinicians via the RPH Centre of Excellence.

Question submitted by Pauline Callagher:

 “Why are the  Commissioners unwilling to support local Clinicians to provide this essential service locally,
as it will be more effective,
shorten the distance travelled by patients,
responsive and economical to the  NHS?"